Monday, July 2, 2018

Change is no small change. Here's the plea.


For all the "Jeff's" out there.


WJW Mental Health Legal Fund
P. O. Box 991
McAlester, OK 74502
WJW Mental Health Legal Fund was founded in support of the most chronic mental health cases in Oklahoma, after learning 

there is no category for mental health attorneys.  
Anywhere.
Our mission is to advocate for the indigent mentally ill and their families. This inclues raising awareness on both basic and progressive issues.

Due to Oklahoma being officially the world's biggest jailer [1][2] and an estimated 55% of all incarcerated having a serious and/more debilitating mental illness diagnosis [3][4], our nonprofit organization aims to reverse this expensive and detrimental trend, through appropriate legal representation.

A Few GOALS:
* To mainstream and raise awareness about laws, such as the Oklahoma Statute under Mental Health 43A O.S. § 1-109.1. [5]  So those that the afflicted mentally ill have lawfully designated as Treatment Advocates are universally recognized throughout the State of Oklahoma.

* To bring awareness and advocate for change, such as in the currect Federal HUD regulation that allows a criminalized mentally ill adult to lose subsidized housing, thus creating more homelessness and incarceration, due to their disability. [6]

* To advocate for mandating a simple DNA swab test developed by the Mayo Clinic, proving medication tolerance, so to prevent administering a prescription that an individual is allergic to and that woudl - instead of helping to cure their mental healht condition, would be causing more psychosis and damage. [7]

* Establish scholarships for Oklahoma law students to focus on mental health issues. WJW Mental Health Legal Fund respectfully requests financial support that will reverse the spiraling trends Okahoma is facing, would save millions of diollars in the state budget due to those suffering falling through the cracks in a perpetually broken system, and most importantly, will give these most forgotten real and tangible 
HOPE

This funding would cover hiring top tier legal scholars, functional medicine doctors, private pryshiatrists, and experts to testify to the benefits of offering more than what the State of Oklahoma can now offer to these who are the most long-term, and severely suffering. WJWMHLF will administer financial assistance, including copays for medication, therapies, or testing, help with court costs, and future plans to build care facilities modelled after the Top 30 Gold Standard facilities in other states. [8].  Since jails are now the long-term hospitals, we can and must do better. Criminalization of the mentall ill
MUST END.

We would also welcome donations on a monthly basis. If your company has matching funds, let us know and we'll figure that out.

Thank you for your support.
WJW MENTAL HEALTH LEGAL FUND
[1]http://www.tulsaworld.com/homepagelatest/recipe-for-disaster-oklahoma-s-incarceration-rate-now-no-in/article_0561c981-5e48-51a0-812e-19c22b33f55d.html

[2]http://www.tulsaworld.com/opinion/opinionfeatured/oklahoma-corrections-director-three-things-oklahoma-must-do-now-that/article_0f914410-579c-553d-bacb-ba9a3e72c20c.html

[3]https://ok.gov/odmhsas/Substance_Abuse/Oklahoma_Drug_and_Mental_Health_Courts/

[4]http://www.okumcministries.org/cjamm/files/CJAMM_Fact_Sheet.pdf

[5]https://law.justia.com/codes/oklahoma/2015/title-43a/section-43a-1-109.1/

[6]( Page 5 ): https://www.hudexchange.info/resources/documents/notice-cpd-16-11-prioritizing-persons-experiencing-chronic-homelessness-and-other-vulnerable-homeless-persons-in-psh.pdf

[7] https://genesight.com

[8] https://artausa.org
501(c)3 nonprofit * EIN Tax ID: #83-0791888






DONATE AT THE FOLLOWING LINKS:

https://www.paypal.com/cgi-bin/webscr?cmd=_s-xclick&hosted_button_id=TBBM3B72HWUYY
https://www.facebook.com/WJWFund/

Long time coming. - Jackie Welton DiPillo

Tuesday, June 19, 2018

501(c)3 Nonprofit WJWMHLF: Please share.

Thanks to everyone that is interested in this blog.  
YOU are amazing!  
The fact that you care about these difficult issues keeps us working hard to make a difference. 
A BIG UPDATE  
We are VERY excited to have been approved as an 
official 501(c)3 nonprofit
to help change the broken mental health system, legally.
~~~~~~~~~~~~~~~~~~~~~~
WJW Mental Health Legal Fund
~~~~~~~~~~~~~~~~~~~~~~
Oklahoma's statutes on mental health were written over sixty years ago, and have NEVER been litigated! 
There is nothing for lawyers to cite. 

We are breaking long overdue "new" ground.  
MAVERICKS
Jeff is the "class representative"
We are making progress, with a world class legal team.
This case could truly change the nation.



Designed for 
everyone like Jeff...
one case, person, situation 
at a time.  



We are working on getting a web presence...
starting with a Facebook page.  
I will keep this blog in the loop with our progress.
Soon, we hope to have credit card ability, and a website.  
One thing at a time while we press on with the legal process.

We won't be paying ourselves. All the money will go directly to fund the legal case. It is a VERY expensive undertaking and we need much support.
With our EIN tax ID# and our incorporation documents secured, we forge ahead, hoping to make a lasting difference for all those suffering, hoping to prevent criminalization, homelessness, medication intolerance damage, by helping the mentally ill and their families on this difficult journey. 
We are proud of this cause, as it will literally save lives.
Thank you for caring. If you would like to help us continue on this long-overdue battle to improve the mental health system, please mail tax-deductible donation checks to:
WJW Mental Health Legal Fund
P.O. BOX 991
McAlester, Oklahoma

74502
Together, we can and will move this mountain.
#EndCriminalization
#MandateDNAswabTest4MedicationTolerance
#PreventBrainDamage
#FirstOnsetPsychosisMRI&MedicalWorkup
#FacilitiesAdhere2TreatmentAdvocateStatute
#ExpungeFelonyRecordsDueToDelusions
#NewKindOfHospitals
#EaseHomelessness
#CatchThoseFallingThroughTheCracks
#FixTheFailingMentalHealthSystem
#EstablishLawSchoolScholarships
...
Please share.
Thank you,
Jackie Welton DiPillo

TAX DEDUCTIBLE DONATIONS, here: 
https://www.paypal.com/cgi-bin/webscr?cmd=_s-xclick&hosted_button_id=TBBM3B72HWUYY







SaveSave

Thursday, June 14, 2018

Therapy. Let's Talk.

Hi.  My name is Jackie, and I get therapy.

I hereby profess, once or twice a week, I get counseling.
From a professional.   
Even my insurance thinks it's worthy.  
...and we all know health insurance doesn't pay for things that don't work.  

If INSURANCE thinks it's worth covering
WHY isn't it offered to the chronically mentally ill?

In my experience, psychotherapy is an organic process that unveils the shadows and angst in my daily world.  My grief and burdens are heard without judgement.  It's a safe place to express innermost thoughts, fears, troubles... And the psychologist is trained to help heal my wounded soul and #shrink the scars in my heart.

From the Oxford Dictionary:
ther·a·py
ˈTHerəpē/
noun
  1. treatment intended to relieve or heal a disorder.

    "a course of antibiotic therapy"

    synonyms:treatmentremedycure

    • the treatment of mental or psychological disorders by psychological means.


Therapeutic counseling heals, cures, remedies, treats.  

When the ire of the world wreaks havok in our lives, resulting in things like anxiety, high blood pressure, (and pimples!), I'll opt for first TALKING about these problems with a skilled professional, instead of taking a drug that probably has some very uncomfortable and possibly permanent and damaging side-effects.  

I always feel better after therapy.  It brings relief.  There's no more natural way to lessen the load.  But for the chronically mentally ill - these MOST IN NEED of everything available, our system doesn't offer counseling in acute care facilities.  Yet another reason the statistics are getting worse, not better.  I believe it should be offered first, so the caregiver can treat the patient like a human, and procure what's ailing them on a sensitive and personal level.  Instead, those in crisis are met with a needle full of tranquilers...who cares if they're allergic to old, first generation neurotoxins.  Not a thought whether that forced drug could be doing more damage to this fragile soul.  Na.  The patients are now called "consumers" because they are just that:  consumers of meds.  Whether they like it or not.  

The only way to cure something is by finding the root cause and treating THAT.  In the case of psychological trauma, it's the psyche that needs gentle, thoughtful, careful treatment.  I hate it that most people think the definition of "treatment" is a drug regimine.  This is a problem.  Sensitive people feel things deeply.  With the rise in suicides, the current approach of RX after RX, is not working.   #care #compassion #time - not chemicals.

A broken heart can't be medicated to wellness.  And until a doctor can show me lab work to prove there's a chemical imbalance, forced drugging should be a last resort.  Think about it.  When there's a broken bone, a scraped knee, a bruised muscle...these injuries have to heal.  Pain medicine only masks the symptom of pain, but the cause of the pain is from a deeper source, and true healing comes from regeneration and restoration, not from masking symptoms. 

Twenty years ago I tried the anti-depressant Zoloft ® during a bout of the blues, after moving to another state.  All it did was cause me to lose my emotion.  I was "flat."  I no longer felt sad, but I also couldn't feel happy while on it.  Forget that!  So, I titrated carefully off after about six months, because this was not the answer.  I'd much rather FEEL life, than be a neutralized zombie.  We have feelings for a reason.  Emotions are a guage to what's right and wrong in our lives.  Feelings are important, and LOVE is the King of all feelings.  Love is the great healer.  Great emotional pain will take time...and love... to heal.  A good psychotherapist is like a soul whisperer.  There is no pill to cure psychological ills.  Talk therapy is a soothing balm on a raw, emotional wound.  It is an ointment for the psyche that heals after the sting and injury of deeply painful experiences.

Human beings can be fragile.  We should treat the most seriously suffering, with the most tender care.


I recently found an article from the National Alliance on Mental Illness (NAMI) https://www.nami.org/Learn-More/Treatment/Complementary-Health-Approaches

Reading about these complementary health approaches was a nice surprise, given the medical model's pharmacologic approach to "treatment" since the 1990's "Decade of the Brain" has been in full force mode.  My brother, who's been entrenched in the mental health system for almost thirty years, was never offered counseling for the first fifteen years.  The hospitals only offered him drugs.  Still, to this day, psychotherapy is not generally offered.  I think this is wrong.   So, thank you, NAMI... maybe, just MAYBE the pendulum is starting to swing back to at least middle ground - away from the "medicine only" approach to mental illness treatment.  I pray it is so.  This NAMI piece gives our family hope that finally the nation is starting to realize, "traditional medical... methods... often do not completely lessen or eliminate syptoms of mental illess.  As a result, many people use complimentary and alternative methods to help with recovery."  Thank God.  Music to our ears.

It lists:
Natural products, like supplements.  Yes!  B vitamins, for example:
https://www.psychologytoday.com/us/blog/integrative-mental-health-care/201709/b-vitamins-play-important-roles-in-mental-health-care

Mind/body treatments, such as yoga and meditation can improve anxiety, mood, fatigue, and ease side effects of conventional medicines.

Animals are great soothers, too.   Complimentary therapies can include:
Aviary/bird therapy for PTSD.
Pet therapy for the depressed.
Equine/horse therapy for autism, etc.

Horses are sensitive creatures that can help ease depression and impulsivity.  Maybe the reason everyone travels with their pets now, is because they are healing companions.  I know they can become "family" ...all good.  Bonus if they're trained to aid in our recovery!  All the better.


The most obvious and utilized is - Music therapy.  


We wouldn't all be sporting EarPods if music didn't collectively soothe our inner beasts.   https://en.wikipedia.org/wiki/William_Congreve 


LOL!  I always think of good ole Bugs Bunny when I hear that phrase... https://www.dailymotion.com/video/xit15
(You get me?)

I can't imagine there being a downside to talk therapy.  
Being able to freely rant to an unbiased fellow human who is ready, willing and able to help unravel perplexing, confounding, personal issues?  Uhhh....yes!  
Therapists assist in objectively sorting out 
the good/bad, the pros/cons, resulting in better personal insight.  
Understanding WHY things injure is is vital to being able to let it go.  
Wouldn't anyone benefit from having someone 
untangle the broken Christmas lights...er...messy complications 
that can cloud our thinking?  
Life is HARD.  I, for one, need all the help I can get.  
My therapist is a kind ear that listens when I cry.  
She provides a window where I can vent my anger, longing, and sadness.  
It's like telling a trusted confidante our struggles with no risk.
Therapy is where painful truth gets purged, filtered, accepted or rejected.  
It helps bring the psyche back to balance, harmony, wholeness and peace.  
Keeping the pain inside will cause it to fester.  
Stress makes the body ill.  No thank you.

It's kinda like confession 
without having to do 
ten Hail Mary's and five Our Fathers.
(I'm not Catholic, 
but I married one.) 
Quote:
 "Confession is good for the soul because it allows us an avenue to release pain and inner conflict"  https://www.quora.com/Why-is-confession-good-for-the-soul

All these are reasons that every psychiatric hospital should offer individual therapy, and not just meds.  Many times, the patients don't have someome they can confide in.  If they've been troubled for a long time, friends have probably abandoned them, family sometimes give up on them, and society misunderstands and ridicules them.  They need ALL the help a facility has in their medicine bag.  At the very least, therapy should go hand in hand with medication.  Better yet, START with therapy, and keep it as natural as possible.  Last resort should be a forced prescription...and only allowed as long has it can be proven that the RX can be metabolized by the individual DNA of the patient.  The Genesight.com swab proves a person's DNA tolerance of psych drugs.  This should be mandated.
  
"Environmental factors such as stress may trigger episodes of mania or depression, and counseling can help a person identify and deal with these triggers."
https://www.healthandwellnessalerts.berkeley.edu/alerts/depression_anxiety/Psychotherapy-Pros-and-Cons_7771-1.html

Therapy is necessary.  I'm grateful for my counselor, who is willing to listen through my tears, take my stories of sorrow and help me see them in a new way, and work past life's difficult issues.  This makes things better.  Therapy is like a mirror that reflects and projects a better tomorrow.   


A line from a television medical drama states is perfectly:  
"When we examine a psych patient who's in prison, 
we have to ask ourselves, is this person really depressed, 
or are they just living in a situation that is so awful, 
so inherently depressing, that any person would have these feelings?"

Exactly, @NBCChicagoMed.  This is what everyone needs to understand.  
Sometimes our reaction to life is completely appropriate.  That does not mean a drug is needed.

*******************************************************

I don't care how many degress you have.
If you think someone with Schizophrenia or Bipolar disorder 
or the combo-pack Schizo-Affective Disorder 
wouldn't benefit from individual talk therapy,
maybe YOU should see a counselor.  

This is a no-brainer.

This is my opinion and I'm stickin' to it.
~ Jackie Welton DiPillo ~

Friday, May 25, 2018

Lifesaving Basics, "mental illness" Style

Me again. :)
Two basic premises in the life of the family of a mentally ill loved one. 

These are absolutes.  
Needs, not wants.  
Life preservers, that, had our mother not been the buoy for Jeff all these years, 
he would've drowned in the undertow of the unrelenting roll of a hard and negative tide, long ago.
Jeff would be dead if mom had not done the heavy lifting for her son.  #30yrsRunning  #MamaBear


































1. NEED FOR FAMILY INVOLVEMENT 
Families usually give up because it's too difficult.  Our mom is a hero. 
EXAMPLES
a) Social Security Disability benefits:
Our loved one is 49 years old.  Since age 21, he has had Social Security benefits, based on disability (Supplemental Security Income - SSI, and Disability Insurance Benefits - DIB).  Thankfully, our mother worked for the Soial Security Administration Hearing and Appeals Office, so she knew how to help her son.  Most families hae no idea how to get their loved ones these benefits. 
During hospitalizations of over 30 days, the SSI goes into suspension.  Upon discharge, it then has to be taken out of suspension by contacting the Social Security Administration and showing official documents with dates he was inpatient.   
Mom has to handle this every time.  Our loved one cannot.  Where would he keep records?  He has no computer, no cell phone, and has lived at over twenty addresses in the last three years.  Impossible.

When he is inpatient or incarcerated over 30 days, his official Representative Payee (which is mom) must completely RESTART his DHS Medicaid (Soonercare) and his meagre state supplement ($20ish/mo.)  If she didn't, he would be destitute, or worse.  The job of the Rep Payee is time consuming, emotionally draining, and difficult - due to the need for precise record keeping.  When someone else has done it, things like court payments have been late, and money isn't transferred on time.  Jeff's life falls through the cracks if whoever manages this doesn't have a vested interest in making SURE things are taken care of.  
Mom has had to restart his benefits dozens of times.  As well, his Medicare (Federal Health Insurance) gets cancelled because he has no state benefit during these incarcerations or hospitalizations to pay for the Medicare premium.  To keep Medicare, his Rep Payee has to use his small SSDI money to pay to maintain coverage.


b) The Treatment Advocate law:
Designation of Treatment Advocate under Oklahoma Statute 43A O.S. § 1-109.1.

In 2006, mom was asked by one facility if she was her son's treatment advocate. The family had never heard of this, prior.  Since, the experience throughout the state has been, this statute is not recognized nor adhered to.  Facilities do not freely offer the family this form, so families have no idea they have this an an option to help their loved ones.  When mom presents the "Designation of Treatment Advocate Form," each facility says something like, "we have our own form that you will have to sign." 

A year ago in January 2017, mom and I worked with Senator Joe Newhouse in rewriting the DTAF (our acronym) for it to be UNIVERSAL, but the legislature decided not to approve or even spend time on this.  The goal was to have it downloadable from ODMHSAS so families would not only know about it, but families and facilities would have easy access to a universally recognized form.  
We can only hope this will be revisited in future legislative sessions.

It's impossible for someone with chronic mental illness to navigate a disjointed system without caring advocates offering tangible assistance.  
We need to streamline how a willing advocate is able to help their loved one.  The job is too much for ONLY the family.  The family needs support.

***********************************************************************************



2. NEED FOR   ENHANCED CARE
#NeedNewHospitals

IADL Criteria (w/ experience examples):
"Instrumental Activities of Daily Living" (IADL) - Activities related to independent living which includes preparing meals, managing money, shopping for groceries or personal items, performing light or heavy housework, doing laundry, and using a telephone.
These are normally associated with elder care websites, regarding dementia, etc., such as:  https://www.kindlycare.com/activities-of-daily-living/


a) Companionship and mental support:
"This is a fundamental and much needed IADL for daily living. It reflects on the help that may be needed to keep a person in a positive frame of mind."
Our loved one has zero friends.  He lives a solitary life.  And though his routine is to get out every morning, on foot, and interract with the world, his only significant relationships are his senior parents, both handicapped, and his two sisters that live away from Tulsa.

b) Transportation and shopping:
"How much a person can go around or procure their grocery and pharmacy needs without help."
Our loved one has never owned a home or a car.  He has been homeless over half his life.  He asks mother, who lives 100 miles away, to come to Tulsa whenever he is discharged from inpatient facility or criminalization, so she can take him grocery shopping.  Mother also helps him ascertain a monthly bus transit pass.  
c) Meal preparation:
"Planning and preparing the various aspects of meals, including shopping and storing groceries."
Our loved one can manage to microwave a prepared meal.  He can make a simple sandwich.  He eats canned food, cold.  It's best that he have a place to live that prepares meals.  This is very rare.  He has utilized Crossroads Clubhouse in Tulsa, which offers meals for $2.00, and encourages involvement in work tasks.  https://www.crossroadsok.org
Nutrition is key.  Having healthy meals is a necessity for a healthy brain.
d) Managing household:
"Cleaning, tidying up, removing trash and clutter, and doing laundry and folding clothes."
Mother helps him by coming to Tulsa to take him to the grocery store.  She has always helped him clean his subsidized apartment(s).  She allocates his money to hire others to help him do his laundry and clean.  
Jeff's body is older than his years.  He's in too much pain, distress, and he's too weary from walking around all day, every day.

e) Managing medications:
"How much help may be needed in getting prescriptions filled, keeping medications up to date and taking meds on time and in the right dosages."
This is a complicated issue.  Sometimes Programs of Assertive Community Treatment (PACT) teams refuse to assist. 
t would be helpful for him to have a prescription delivery service.  He would need help setting that up and maintaining it.

f) Communicating with others:
"Managing the household’s phones and mail and generally making the home hospitable and welcoming for visitors."
Again, complex.  Due to delusions that aren't cured by medications, our loved one has thrown his cell phone away many times.  For this reason, the family cannot put him on a cell plan, because they are binding and would still have to be paid.  Therefore, our elderly father that lives in Tulsa (age 82 and depends on a walker) will take him to get a free government cell phone.  Our loved one doesn't have money to pay for such "luxuries" and the cords/accessories even moreso.  His lifeline is speaking to his parents every day, as well as his sisters.   
What will he do when his parents are too old and unable to do these things for him?  We are starting to face that, now.

g) Managing finances:
 "How much assistance a person may need in managing bank balances and checkbooks and paying bills on time."
A person with SSDI and SSI may have a total gross income around $750/month.  He has been homeless many times, and truly has lived on nothing, at times.  Mom is his official Social Security Representative Payee, so she reports to the SSA how his money is used, yearly.  On the daily, she uses a banking app to transfer small "meal" amounts, so he won't use up all his money at the beginning of each month.  Before apps, she used to mail him a week's worth of daily checks to cash for meals.   
Managing his life, as our mother has to do is more than a full time job.  He cannot do it on his own.


***********************************************************************************

Summary:

When the old psychiatric hospitals started closing fifty years ago, 
replaced by Community Mental Health Centers, 
homelessness and criminalization ensued.  
We need a new kind of care facility, 
with the goal of treating the root cause, 
rather than only the "medical model" of forced prescriptions 
which does not cure delusions or paranoia, 
and is but a bandaid to curtail symptoms. 
RX side effects may cause the very symptoms they are prescribed to help.
  
Every person is a valuable individual, 
and should be treated with care and compassion. 

NEEDED all across the USA: 
*A long-term facility with a low-stress and serene environment.
* Individualized nutrition.
*Trauma counseling/psychotherapy, individual and group.
*Family involvement and support.
*Education at all levels, e.g., GEDs, college courses, iner alia...
*Therapies: music, pet, exercise, equine, aviary, etc.
*Testing for individual DNA/medication tolerance, and other medical proofs like MRI.
*Initial medical work-up of first-episode psychosis, to rule out possible mimics, preventing damage.

This would actually save money, but that's for another day. 

**************************************************************
Where there's a will, there's a way.

Jackie Welton DiPillo.  
                                                         For my brother.