Wednesday, March 7, 2018

JACKIE'S PSA: RIP to the Wild West Medieval

I screamed, “Please don’t kill my brother!” 
Then I woke up. 
But awake doesn’t mean the nightmare is gone.  It’s actually worse.

In dreams, the psyche tries to work out life’s stressors, in the subconscious. 
But THIS stressor is real.  It is keen and all too conscious.
The real and looming concerns are a living nightmare for this family.

This isn’t something a sister should ever have to think, or say. 
Nor should our mother have to worry her only son could be shot dead on a public street, due to the delusional life that has been thrust on him. 
No parent should.  
Moreover, delusional people should be dealt compassion, not a round of lead.  

I get it.  It’s scary.  WE KNOW.  This is "Jackie’s Public Service Announcement, op ed"
 ~ because there HAS TO BE A BETTER WAY.  
We will not rest until there is.
Current scenario: 
Our loved one is currently INPATIENT at one of the facilities where people in mental crisis are taken in an Emergency Order of Detention - to avert danger (and/or disaster).  Under the law, EOD happens when a person is “danger to self or others.”   It’s a temporary stay no matter what, because there are no long-term hospitals any more.  Nowhere.  We desperately need them…albiet much better ones than those long gone.  That’s another story for another day.

The process at the crisis facility goes like this:  
Mental health court, being informed by the medical professional at said facility, saying the “consumer” (< a horrible term now used instead of “patient”) is “sick”, so they are kept for a short amount of time.  It is a mere 72-hour window for the doctor to determine the person has “cleared."  Then, although they haven't been cured or healed, the person is discharged.  Meds are used like band-aids to simply "cover" symptoms.  So, discharge does not necessarily mean they are well.  Oftentimes, quite the contrary.  If the “consumer” (the patient >>> the PERSON!) has nowhere else to go, they end up back on the street, HOMELESS.  Under the law, one of the definitions of “danger to self” is not being able to take care of themselves.  Three days clear (<whatever “clear” means) is NOT sufficient to prove readiness to take care of themselves!  That’s just another rung on the long ladder of systemic failure…ugh. These suffering souls are often discharged way too soon, and that, in itself, can create danger.  That, in  itself, HAS created disaster for our family member.  
And it’s not just in our case…oh HECK no.  Read on.

Our loved one is Jeff.
He is my brother.  
Our sister is Penny.  
Marilyn and Jack are our parents.  
We are real people, 
and Jeff’s story is an endless tale 
of injury and injustice. 

He represents many thousands of others in Oklahoma, and across the USA.   The failing system is massive and massively expensive.  The issues boil down to a lack of money, paired with GREED and - as it was explained to me - a culture of arrogance.

Complex issues.  

Today's focus: consequences of the failed system.

💙💙💙💙💙💙💙💙💙💙💙💙💙💙💙💙💙

As mentioned, the long-term hospitals no longer exist.  
They were all shut down when Community Mental Health Centers started.  
So far, this fifty-five year experiment has proven a failure for Jeff’s “life.”  
Jeff HAS NO LIFE.  He has never owned a home or a car. He will never have a family.  
Mr. Invisible to society.  

Jeff has been ground up in an INCOMPETENT systemtoo arrogant to even consider 
that this FAMILY MIGHT ACTALLY KNOW what we’re talking about.


The “system” is CRAZY.  
It’s as BROKE as it is BROKEN.   
Still, those running it keep doing the same thing over and over - 
expecting a different result.  
That is the very definition of insanity.  
As I said… #crazy.

Merriam-Webster defines crazy as:  
“full of cracks or flaws; unsound; crooked; askew.”  
An apt description of mental health "care" in the USA: cracked, flawed, askew and crooked.  
Oklahoma is at the bottom of this dungheap.  
There is no room for arrogance in a pile of……abject failure.   


My husband, John, is an executive in a prominent healthcare company.  He runs one-third of the country and deals with hospitals and their administrators every day. When I was catching him up on recent events in the life of Jeff this week, he said something that hit home: 
“Good thing the psychiatric facilities don’t get paid by results.”  
Spot on.  We have fiscal records for Jeff’s hospitalizations during the 18 months prior to his arrest, showing $288K wasted while Jeff only got WORSE.  How many “Jeff’s” are out there?  Thousands...or millions?  Astronomical numbers!!  Think about that, broke Oklahoma.

You are probably wondering why Jeff can’t live with family.  I’ll explain it as simply as I can; After almost three decades, Jeff’s delusions are now fixed and the brain damage, exponentially worse.  Jeff doesn’t understand we ARE his family much of the time.  His delusions tell him we are imposters that either killed or allowed his real family to be killed.  This angers him, and at times, he lashes out.  But this isn’t our REAL JEFF.  Our Jeff is superbly and wonderfully kind and generous.  It’s the forcing of possibly inappropriate medicines that has caused this, and that’s the only “treatment” they ever administer under the current medical model in Oklahoma.  A chemical guessing game, with no checks and balances.  So, the whole family suffers due to the arrogant system, too.  Thanks.

Adding insult to injury, there will be NOWHERE for Jeff to go when the hospital discharges him.  We recently learned the Mental Health Association Oklahoma can no longer offer Jeff a subsidized apartment, even though we were promised (I have the email) they would save an apartment for Jeff when the farce of his criminalization ended.  On February 9, Jeff’s “criminal” charges were dropped, but then the news we got floored us. The U.S. Department of Housing and Urban Development rules say, if someone is incarcerated over 90 days, they lose their eligibility for housing.  Jeff has been officially mentally disabled for almost three decades.  He was criminalized FOR HIS DISABILITY and punished by the Oklahoma Department of Corrections for 18 months for committing NO CRIME.  The STATE of OKLAHOMA asked for the charges to be dismissed, and DUE TO THIS JAILING OF AN INNOCENT MAN, HUD says NO, you can no longer have a place to live.  HOW WRONG CAN THIS GET?!!!  THIS MUST CHANGE.  
Legislators????????!!!!!!

We’ve heard the “crisis facility” has a date in mind for Jeff’s discharge - April 29, 2018.  Where they came up with THAT is beyond me.  JEFF IS DECLINING.  IT IS SCARY.  How on earth do they think they know when he’ll be ready for discharge on a specific date?!  WTH?!   
Arrogance doesn’t know it is arrogant.
                                    That must be it.  
#MirrorNeeded  #BenefitOfTheDoubt?

And get THIS!  David L. Moss Criminal Justice Center  (aka Tulsa County Jail) told mom last month they lost all of the personal belongings Jeff arrived there with.  She went to pick up his things after DLMCJC transferred him to the crisis facility, but all they gave mom was a small bag of Jeff’s papers.  His clothes, his shoes, his prescription eyeglasses and his wallet, all LOST.  Even the Salvation Army homeless shelter will not take Jeff without an ID and a TB card.  THE JAIL LOST THEM.  This is where Oklahoma and AMERICA’s chronic “mentally ill” HOMELESS comes from.  Jeff is indigent.  System failure at every turn.    (More on this at a later date.)

THERE IS NO WINNING
*****

Today is
DAY 51, inpatient.  The medicines never fix Jeff's delusions.  This is how it always goes. 
At best, psychotropic drugs mask symptoms and only serve to temporarily tranquilize.  
In Jeff’s case, they make him worse. 

* We have ASKED the current facility to have Jeff’s DNA tested for RX tolerance.  
* We have INFORMED the facility of Jeff's multiple past state hospital medical diagnoses that manifest in psych symptoms. 
* We have REQUESTED one simple urine draw and a simple blood test to help them avoid harming Jeff, further, 
* and WE OFFERED TO PAY FOR THESE TESTS, but -
WE WERE REFUSED. 

This begs the question –
WHY? 
Are they afraid of more information that could prove they’ve been wrong all these years?  
I can think of no other reason.

To be clear,
Jeff does NOT have a dual diagnosis.  He has never used street drugs.  He tests CLEAN, every time.  This situation is not a consequence of any “bad choice” Jeff made, nor is it a lifestyle or culture issue.  Jeff does not abuse substances.  But the neuroleptic drugs that have been forced on him for 29 years ARE DEPENDENT drugs, and he has to endure DETOX every time they stop or change the RX.  This happens ALL THE TIME.  Oklahoma doesn’t seem to know it’s necessary to very slowly titrate incrementally off these drugs, lest the patient suffers permanent brain damage
As is, the system is creating a MONSTER of a problem.   https://www.medscape.com/viewarticle/439736_3 

This bears repeating.
We treat those with mental illness labels inhumanely.  Animals are treated better.  My brother has been locked up since he was wrongly arrested on July 26, 2016.  Have you ever seen a tiger pacing back and forth at the zoo?  That beautiful creature longs for freedom, just like Jeff longs for freedom from being forced to endure neurotoxins that are accomplishing nothing more than a 
CHEMICAL LOBOTOMY!

This family has everything documented.  
The “medical model” medication protocol DOES NOT WORK FOR EVERYONE, 
and the culture of arrogance in Psychiatry is precisely why the statistics are rising for the mentally disabled in the United States, since the 1950s, when first generation “anti-psychotic” drugs were brought into the market, and then exponentially rising since the advent of the newer class of drugs and the diagnosis expansion of the DSM-5. 

Is Psychiatric Accuracy A Challenge?

Use DSM-5 Cautiously, if at all:

Jeff might be damaged beyond repair.  
We pray not.  But with each round of forced brain toxins, he becomes more delusional. 

There have been many times that the police have had to step in.  
We are GRATEFUL BEYOND WORDS when police (in whatever city) have helped during a crisis.  Many times.  On the other hand, Jeff has been thrown in jail or prison for his disability (i.e., delusions).  This is wrong.  The delusions are REAL to the person suffering them, and the U.S. Government acknowledged this years ago when they approved his Social Security Disability Income as a “mentally ill” disabled citizen.  (Now don’t get your dander up, Jeff is indigent. He gets a whopping $750/month to survive since he CANNOT hold a job.)  As I’ve said before, justice is blind.  But we hope to open the eyes of justice, by continuing to tell Jeff’s harrowing, lifelong story.  His truth just might help improve things for everyone!  That is our dream.

Our current dilemna = no options except homelessness is UNACCEPTABLE.  
And because Jeff will still be delusional when discharged, the fear of Jeff being killed by law enforcement sits in the forefront of my mind.  I have PTSD over this.  
I see “Jeff” in every person one of these incidents.
They are all someone’s brother, father or son, needing a public outcry.  
We will be their voice.
I've engaged in Facebook "debates" with police officers, in comments under news articles when mentally ill citizens have been killed by LEO.  Here are some screenshots:  

My position is this:  Why can’t LEO develop a new dart gun to tranquilize someone they KNOW is “mental” – even if brandishing machetes … Or how about developing a NET to cast over a “deranged” individual, instead of SHOOTING AND KILLING THEM!  If only we had the WILL to DEVELOP such devices, we could solve this!  Again, they tell me it’s a money issue.  Well, if it were THEIR SON or BROTHER, they’d get the money. 

Does anyone think in 100 years we won’t have better options?  If so, THAT’S A HUGE PROBLEM.  THIS ISN’T THE WILD WEST.  The more this happens and opens MY eyes to truths, the more I’m wishing we could get the hell outta Dodge!  Alas…Oklahoma is HOME.  We’d rather SAVE IT than run from it.  That’s what we’re striving for; to change things for the better, instead of accepting “2018 status quo” as the end-all, be all.  Status quo is sorely lacking.

DO BETTER, WE MUST.  Much MUCH Better.

I BELIEVE the next generations will find these solutions, despite current stuck and stubborn mindsets that think “we can’t”.  Where there’s a WILL there’s a WAY.  
And MY FAMILY’S “WILL” IS BIG ENOUGH FOR ALL of the naysayers.
WE CAN.  And WE WILL. 
Just watch.

****************************************************************************
~Disturbing~
Below are links to various instances in Oklahoma where suffering MENTALLY ILL ended up dying or being killed by law enforcement, some while in jail. 
I can’t imagine this is accepted as normal across the United States. 
These are just the ones I found easily the past 5 years.  How many more are there?
WE DO NOT WANT THIS TO BE JEFF!
Cruel, uncivilized, primitive, subhuman.  Positively medieval.  
UNACCEPTABLE
*********************
In honor of these mentally ill, who died too soon.


Marconia Kessee, mentally ill man, age 34
died after cruel treatment, Jan. 16, 2018
Rest In Peace
TITLE:  Oklahoma cops cruelly mocked mentally ill man for ‘faking’ illness — 
but he died in their custody
 VIDEO:
And MORE:

'You can stop with the show': Body cam footage shows Norman police taunting man later found dead in jail.

by -Jan 26, 201


**************************************************

Jacob Craig, mentally ill/substance abuse, age 31 
Killed Christmas Day 12/25/17
Rest In Peace
TITLE:  Man fatally shot by Tulsa officer battled mental illness, mother says  

*************************************************

Dustin Pigeon, mentally ill/suicidal man, killed 11/15/17 Age 29
Rest in Peace
TITLE:  Disturbing Body Cam Shows Cop Murder Unarmed Mentally Ill Man With Hands Up—Cop Charged
An Oklahoma City police officer has been charged with 2nd-degree murder for killing an unarmed mentally-ill man on video .
By- Jack Burns -

****************************************************

Charlton Cash Chrisman, 40, mentally ill inmate
died April 19, 2017
According to an autopsy report, a contributing factor in the death was 
"multiple pepper ball injuries."
Rest In Peace
TITLE:  Video shows pepper ball shooting of Oklahoma County jail inmate
by Nolan Clay Published: December 18, 2017 5:01 PM CDT 
Updated: December 18, 2017 7:28 PM CDT

************************************************

My brother in law in McAlester told me about this man, his childhood neighbor...

William Frostmentally ill man, age 58  
Killed October 21, 2016
Rest in Peace
TITLE:  Police Release Name Of Man Killed In Officer-Involved Shooting
Posted: Oct 23, 2016 4:18 PM EDT Updated: Oct 23, 2016 5:05 PM EDT

VIDEO:
TITLE:  Tulsa Witness' Cell Phone Video Captures Officer-Involved Shooting
Posted: Oct 21, 2016 5:52 PM EDT Updated: Oct 21, 2016 10:07 PM EDT
BY: ANNIE CHANG, NEWS ON 6
http://www.newson6.com/story/33448877/tulsa-police-officer-shoots-suspect

***************************************************


Joshua Barre, mentally ill man, age 29
Killed June 9, 2017
Rest In Peace
TITLE:  Tulsa police kill man armed with knives after mental health call 
By Nicole Chavez, CNN
Updated 11:14 AM ET, Sat June 10, 2017
https://www.cnn.com/2017/06/10/us/tulsa-police-fatal-shooting-oklahoma/index.html

TITLE:  Oklahoma Law Enforcement Officers Kill Man, Sparking Protest
3 law enforcement officers in Tulsa, Oklahoma, fatally shoot man while trying to pick him up for mental health issue, triggering protest.
By JUSTIN JUOZAPAVICIUS, Associated Press  June 9, 2017, at 11:02 p.m.

TITLE:  Protests erupt after police shoot, kill Tulsa man
By- Rick Jervis, USA TODAY Published 6:58 a.m. ET June 10, 2017 | 
Updated 11:21 a.m. ET June 10, 2017
Dozens of law enforcement officers in riot gear responded to protests Friday in Tulsa, Okla., following a police shooting of a knife-wielding man with mental health issues.

VIDEO:
TITLE: Shooting of mentally ill Tulsa man raises policing questions
POSTED 7:03 AM, JUNE 19, 2017, BY ASSOCIATED PRESS

*******************************************************

Anthony Huff age 59
hallucinating/alcohol detox
Left “to remain in the restraint chair for over 48 hours without adequate food or water in OKC jail."
Pronounced dead on June 8, 2016
Rest in Peace
TITLE:  Oklahoma sheriff & staff face manslaughter charges over inmate’s death 
Published time: 26 Jul, 2017 20:57 Edited time: 27 Jul, 2017 09:07

TITLE:  Oklahoma Sheriff indicted in death of hallucinating inmate restrained in chair for over 48 hours
by- NICOLE HENSLEY  NEW YORK DAILY NEWS  Wednesday, July 26, 2017, 4:59 AM

**********************************************************

One of the most egregious deaths 
happened in David L. Moss, Tulsa County Jail:

Elliott Earl Williams, mentally ill inmate, age 37
pronounced dead in his cell at 11:21 a.m. Oct. 27, 2011
REST IN PEACE
TITLE: Mentally Ill Man Dies, Injured and Alone in a Tulsa Jail Cell
By- Jean Casella and James Ridgeway, November 5, 2012

TITLE:  Jury awards $10.25 million to Elliott Williams' estate 
after his death in Tulsa Jail
By Curtis Killman and Kyle Hinchey Tulsa World - Mar 21, 2017

*************************************************

Most police departments do their own internal investigations after
officer-involved shootings.
Do students in college grade their own tests? No.
That pales in comparison, but you get my drift.
JUST SHOULDN’T HAPPEN, PERIOD!!!
Legislators???!!!!!!!!!
Kudos to Sand Springs PD 
for mandating an objective investigation.
TITLE:  “Sand Springs becomes first Oklahoma city to stop investigating their own officer-involved shootings”

********************

"GO REST HIGH ON THAT MOUNTAIN"
By- Vince Gill (Oklahoman)

I know your life on earth was troubled, and only you could know the pain  
You weren't afraid to face the devil-You were no stranger to the rain

Go rest high 
on that mountain
Son, your work 
on earth is done
Go to heaven a shoutin'
Love for the Father and the Son...

Oh, how we cried the day you left us, We gathered round your grave to grieve
     I wish I could see the angels faces when they hear your sweet voice sing



In closing:  GOOD GOAL!  Thanks, NASHVILLE.  

Every city should prevent the mentally ill from being criminalized.

TITLE:  Summit Examines Why Mentally Ill End Up in Nashville Jails 

Sarah McCarthy - 7:39 PM, Mar 5, 2018

"Our goal is to never have law enforcement involved, we need pre-arrest, pre-involvement intervention," Sheriff Daron Hall said.  When we see someone out on the streets seeing things that aren’t there, screaming and yelling, we need to not view that as a criminal justice matter, we need to view that as mental illness."



Sincerely,
Jackie Welton DiPillo